Ajey Sangai
"Someone whose disadvantage comes from a natural disaster may be an
object of pity, and perhaps of charity. . . . Someone whose
disadvantage occurs as a result of social decision has a more obvious
claim for social remediation.”
Ron Amundson[1]
Taking it further, for those whose disadvantage also occurs as a result
of a legislative decision or due to legislative apathy to the
persistent exclusion and discrimination, they have an obvious claim for
legislative remediation.
Part I: A Build Up for Legal Capacity
In this it must be understood that the construction of legal capacity
that we want to put in the new law is significantly influenced by our
conception of disability policy and equality. Additionally, it is also
shaped by our vision for the new law.
CONCEPTION OF DISABILITY POLICY
The two models of the disability policy are: (i) welfare and (ii) civil
rights. One privileging biological severity as method of classification
and selection and the other rests on the bulwark of social obstacles
that prevented the marginalised sections from participation and
exercise of rights. If we consider the experiential aspect of
disability the biological severity and the social exclusion may not
coincide.[2]
The welfare model of disability policy gives priority to persons with
biologically severe disabilities, on the assumption that disability
policy should compensate for biological limitations. It also emphasizes
maximizing aggregate benefits to “the disabled” as a class even when
doing so disadvantages persons with the most stigmatized
disabilities.[3] In US many courts appear to regard the ADA's
employment provisions as a welfare benefits system designed to
compensate for inherent biological limitations. It seems that they
assumed that unlike the socially imposed disadvantages women experience
relative to men or homosexuals vis-à-vis the heterosexuals, social
factors do not significantly contribute to the segregation and limited
opportunities experienced by persons with disabilities. While there is
a consensus about the racist or sexist language or connotations, there
is hardly any on what could be the ‘ableist’ language.[4] Thus, they
reason that these ‘disadvantages’ flow directly from the individual's
biological traits. Several courts, including the Supreme Court of the
United States[5] have characterized the ADA[6] accommodation provisions
which require employers to remove barriers impeding the workplace
participation of persons with disabilities as providing them
‘preferential treatment’ and not something which is inherent in their
right to be treated as an equal.
A civil rights model, by contrast, focuses on the socially-imposed
obstacles faced by people with disabilities and attempts to remove
those obstacles. It emphasizes an individual's right to be free from
disability-based animus, unnecessary paternalism, and harmful
stereotypes.[7] The argument thus is that the persons with disabilities
routinely experience disadvantages resulting from socially constructed
obstacles wholly separate from their endogenous biological traits.[8]
Society's attitudes and practices attach systematic disadvantage to
particular impairments through prejudice, stereotypes, and widespread
neglect. By so doing, disability rights scholars have persuasively
argued, that the society in fact creates an identifiable class of
“people with disabilities.”[9] The history of political and social
subordination is a ‘trait’ shared by the women, dalits, and backward
classes and so also the persons with myriad physical and mental
characteristics labelled ‘disabilities’ by persons without those
characteristics.[10] Lack of legal capacity only compounds the
marginalisation.
However, the attempt to make newer and more comprehensive law seeking
for domestic implementation of the UNCRPD[11] should not be understood
as abandoning the rationale for protecting the earlier constructed
‘protected class’ to remedy the social exclusion and socially imposed
limitations that persons with disabilities frequently experience. CRPD
also to this effect says that protective measures taken to bring person
with disability at par with others would not be considered as
discriminatory.
The law must strive to have as much orientation towards civil rights
model as could be and for that it is important that we must have some
parameters to identify disability and also the persons with high
support needs in that framework. There is always an apprehension in
reverting back to the medical paradigm, since it is a used and thereby
convenient model, allowing it has the probability of overshadowing the
model which is relatively new. Hence, to begin with, if the law would
contain enumeration of entitlements which would need some fixed
criteria of allotment, and hence may not be in complete pari materia
with social model, we may forge an amalgam of two paradigms. However,
the thrust should be for the civil rights model that will entail far
greater development of capabilities. To this end, the law may prescribe
a transitional period within which the protocols for identification
must be in place and also tried in a few constituencies. The makeshift
arrangement however has not had a commendable history particularly in
the Indian Context.
CONCEPTUALISING EQUALITY
There exists a diversity of opinions as to what is equality and what
should a society do to incorporate and promote this value. The idea of
formal equality can be traced back to Aristotle and his dictum that
equality meant ‘things that are alike should be treated alike’.[12] The
formal approach to equality and non-discrimination supports the
position that a person’s individual physical or personal
characteristics should be viewed as irrelevant in determining whether
they have a right to some social benefit or gain. However, it is
questionable whether law, legislature and judiciary can claim to be
truly neutral to all parties which may render the supposed value of
neutrality of formal equality as merely an illusion.[13] A law may be
prima facie neutral yet may have subsequent disparate impacts.[14] By
masquerading as an independent norm, equality conceals the real nature
of the substantive rights creating a dichotomy between human right and
equality and keeping the two independent rather than in close
conjunction. It misleadingly suggests that one person’s rights
vis-à-vis another’s are identical in all contexts. Finally, by
encouraging the use of monolithic levels of judicial scrutiny
undifferentiated by the importance of the underlying right, equality
erroneously suggests that all questions of equality are to be
scrutinized under a single standard of justification. In this regard,
formal equality may end up confusing than actually clarifying.[15] The
richness and complexity of modern life and modern social relations
makes the application of this approach, as a basis for integrated and
comprehensive non-discrimination laws and measures, too simplistic.[16]
With recent constitutional reforms, informed by academic debates, more
sophisticated norm of equality was sought to be developed which takes
into consideration the richness and variety of human lives and
relations and subtle characteristics which may cause discrimination and
disadvantage.[17] We made a leap towards substantive equality. In that,
we spoke about equality of outcomes and equality of opportunities.
Departing from the formal equality models, they are partially based on
a redistributive justice model. According to this, certain measures
need to be taken to rectify past discrimination as otherwise it will
leave the groups at different starting points. The equality of
opportunity approach injects substantive element by allowing
individuals from traditionally disadvantaged groups to receive special
education or training, or encouraging them to apply for certain
jobs.[18] ‘Equality of outcome’ on the hand is inherently linked to the
group/redistributive justice model and the achievement of a fairer
distribution of benefits.[19]
It has been suggested that focusing on equality of results may afford
too much respect to utilitarianism (in terms of the process of equal
distribution where the process may itself be questionable) at the
expense of other systems of thought.[20] Another perceived danger of
this approach is that it places too little emphasis on the importance
of accommodating diversity by adapting existing structures and the more
fundamental issues.[21] It, in that sense, tends to get more
welfaristic and less civil rights oriented.
There has been a new approach suggested for equality which is the human
rights based approach. As a beginning point it says that equality as a
stand-alone principle has little impact on combating substantive
disadvantage.[22] The contemporary approach of bringing the equality
and non-discrimination agenda within a human rights framework
highlighted other conceptions of equality that previous models perhaps
neglected. This approach is based on dignity, but dignity in this
paradigm is meant to reflect the universality, indivisibility, and
inter-relatedness of all human rights, as understood in present-day
interpretations.[23] It proffers a theoretical distinction between
equal treatment in the distribution of resources, opportunities and
burden and treatment as an equal, which suggests a right to equal
concern, dignity and respect but not necessarily an equal
distribution.[24]
Dworkin says that right to treatment as equal is a fundamental right
while the right to equal treatment is a derivative one.[25]
Furthermore, in some circumstances, right to treatment as equal will
entail right to equal treatment but not, by any means in all
circumstances. The strategy for equal treatment must germinate from the
right of being treated as equal, as a full individual or an end in one
self and not merely the means. This order of fundamental right and
derivative right is crucial in the conspectus of legal capacity for
sub-thresholds, because if we (including courts) lose the ability of
tolerating differential legal treatment actually impairs legal
personality, then human rights laws may then become tools that give
civil incapacities a legal effect.[26] For example, in most legal
systems, disabled people have been among those singled out for legal
treatment or rather as a problem in need of special treatment and not
as equal citizen with a right to full participation in social
mainstream.[27] What they want instead is a law which outlaws and
requires removal of environmental and social barriers which prevent
them from participating on equal terms in the ordinary activities of
daily life, one that enables them to take control of their lives.[28]
To be recognized as full person in law means that one’s legal capacity
including the legal capacity to act, is equally
recognized.[29] Universal legal capacity may be couched in
the terms of formal equality yet without it equality before law and
equal protection of laws[30] would lose their basis and to that extent
consistent treatment which formal equality postulates has its own role
and significance in the society. Legal capacity for persons with
disability in this sense is soul of the treatment as equal from where
through suitable programmatic interventions we may derive equal
treatment through substantive equality which may be then premised on
equality of opportunities. This means that the laws or programmes that
undermine legal capacity, for example, outdated guardianship, coercive
detention and institutionalization must be abolished else equality
would only be a rhetoric.
Part II: Case for a Separate Law and Explicit Legal Capacity for
Persons with Disability
Aristotle distinguishes between ‘arithmetic’ and ‘geometric’ justice.
While according to the former principle, people who are equal in some
respect must be treated equally while according to the latter principle
people who are unequal must be treated unequally.[31] In other words
discrimination may arise if people who are differently placed are
treated similarly.[32] Herein, the term ‘unequal’ implies ‘different’
as the fundamental right to equality that we are speaking about is
right to be treated as an equal from which would flow the derivative
rights of equal treatment, reasonable accommodation and support. This
view also finds support in the Preamble when it expresses a resolve to
secure for all citizens ‘equality of status and opportunity’. Further,
Article 14, in equality before law and equal protections of law, allows
for classification between persons much must pass the twin test of
intelligible differentia between the persons covered and excluded by
law and the rational relation of such differentiation with the object
sought to be achieved by the impugned law.[33] In fact the ‘equal
protection of law’ has acquired a positive content.[34] It is an
obligation on State to take steps to obviate existing inequalities.[35]
Non-action on this front may well violate Article 14. In Naz Foundation
case,[36] the Delhi High Court observed that Indian Constitution
recognises, protects and celebrates diversity. Further, it said, that
the object of the Fundamental Rights was to foster the social
revolution by creating a society egalitarian to the extent that all
citizens were to be equally free from coercion or restriction by the
state, or by society privately. In Anuj Garg case,[37] the court
observed that prohibition of sex discrimination under Article 15
implies the right to autonomy and self-determination, which places
emphasis on individual choice. Therefore, a measure that disadvantages
a vulnerable group defined on the basis of a characteristic that
relates to personal autonomy is unconstitutional. The court expounding
in the concept of ‘strict judicial scrutiny’ observed that:
“…the issue of biological difference between sexes gathers an overtone
of societal conditions so much so that the real differences are
pronounced by the oppressive cultural norms of the time. This
combination of biological and social determinants may find expression
in popular legislative mandate… It is for the court to review that the
majoritarian impulses rooted in moralistic tradition do not impinge
upon individual autonomy.”
It is thus clear that individual autonomy is inviolable. Although, the
Court here was speaking in the context of gender discrimination, yet
same is true with the disability as well as could be seen in the
writing of the disability rights scholarship who have asserted that
‘disability’ more than medical condition is a social construct.
That being so, there is a firm legal basis for (a) a comprehensive law
for the persons with disability, that guarantees rights; (b) special
measures to recognize and protect diversity; (c) this differential
treatment as one promoting equality; (d) the guarantee of legal
capacity for all persons with disability; and (e) the discontinuation
of laws, structures and practices that impinge on the personal autonomy
of persons with disability.[38]
Article 21 protects life and personal liberty of all individuals.[39]
The term ‘personal liberty’ is one of widest amplitude and includes
several derivative rights some of which have been raised to the status
of fundamental rights protected under Article 19.[40] The fundamental
rights in Part III do not have compartmentalized existence, rather the
values of fairness, equity, reasonableness and dignity pervades in all
these provisions.[41] Shah J. in Naz significantly held:
“At its least, it is clear that the constitutional protection of
dignity requires us to acknowledge the value and worth of all
individuals as members of our society. It recognises a person as a free
being who develops his or her body and mind as he or she sees fit. At
the root of the dignity is the autonomy of the private will and a
person's freedom of choice and of action. Human dignity rests on
recognition of the physical and spiritual integrity of the human being,
his or her humanity, and his value as a person, irrespective of the
utility he can provide to others.”
Thus a necessary concomitant of this human rights and dignity based
understanding of equality is an unequivocal recognition of universal
legal capacity. Though it may be a necessary postulate of the concept
of equality and dignity, Lahey offers a word of caution. She says that
unless we do not have a specific articulation of legal capacity in law,
it is not sure if the courts would actually look beyond the social
practices, beliefs and even seemingly innocuous legal texts that
normalise the denial of equal rights to the disadvantages groups.[42]
So long as the discourse of legal capacity is built around the
unarticulated text, merely the values central to human rights, such as,
‘human dignity’, ‘integrity’ and ‘equal respect’ may not form the
adequate basis for the equality claims of the persons with disability.
Part III: Legal capacity and Persons with Disabilities
THE CONCEPT OF LEGAL CAPACITY
When a norm qualifies the act of an individual as a legal condition or
legal consequence it means that only that individual is ‘capable’ or
‘competent’ of performing or omitting to perform that act.[43] However,
competence is generally spoken of in a narrower sense, preferring to
restrict it to action only.[44] In a sense, it means a capacity
recognised by law which would make a person capable of having rights
and obligations. In other words, it makes a person, the subject of
law.[45] This subject of law enters into social relations which with
the incidence of law are transformed into legal relations. Thus in the
nutshell, the holder of rights and duties is called as the subject of
law and his/her vocation to participate in legal relations is called as
‘legal capacity’. Legal capacity is decided in its forms and content by
the law in force.[46]
Possession of rights without legal capacity is impossible.[47] Being
declared incompetent to manage one’s personal affairs entails that an
individual no longer has the legal right neither to make any personal
decisions nor to participate in myriad activities otherwise taken for
granted. Denial of legal capacity would virtually amount to a civil
death.[48] Loss of capacity is directly related to loss of access, for
example, access to justice and access to political process in terms of
prohibition on voting and standing in a election, to name a few. It is
indeed a matter of regret and that till date no country no country had
completely recognized the right to legal capacity of all people with
disabilities.[49]
LEGAL CAPACITY & UNCRPD
Ed Roberts, one of the leading figures in the international disability
rights movements, said: “If we have learnt one thing from the civil
rights movement in the U.S., it’s that when others speak for you, you
lose”.[50] Hence the slogan: “Nothing about us, without us”. The irony,
however, is that legal capacity is required to allow for self advocacy
and self advocacy is needed to obtain legal capacity.[51] In fact,
human rights movement became possible only when state societies began
to reach consensus that the norms of ‘civil incapacity’ must not be
used to delimit various classes of adults.[52] ‘Gaining Control’ or
‘self-determination’ had a universal appeal as the needs of persons
with disability and the potential for meeting them has been conditioned
by a dependency born of powerlessness, degradation and
institutionalisation.[53] The approbation that the CRPD received may
indicate such consensus in the realm of disability rights movement
wherein the presumption of ‘legal capacity’ is extended to persons with
disability like it is for the adults of other disadvantaged groups.
Possibly, this would also initiate a new lexicon which recognises legal
capacity universally and makes it illegal and unjust to trample on
anyone’s legal capacity without her/his
consent.[54]
Legal Capacity is perhaps the most revolutionary of the new norms
articulated in the Convention.[55] CRPD replaces the dualistic model of
capacity versus incapacity with an equality-based model that
complements full legal rights to individual autonomy and
self-determination with entitlement to support when needed, to ensure
substantial equality of opportunities to exercise those rights. It
reflects established principles in international human rights, such as
the universality, indivisibility, interdependence, and
inter-relatedness of all human rights.[56] A guarantee of legal
capacity on an equal basis with others in all aspects of life should
result in the elimination of all such legal regimes that premised on an
equation of disability with legal incapacity.[57]
WAYS BY WHICH LEGAL CAPACITY IS DENIED
An examination of disability laws across jurisdictions shows that the
attribution of incapacity to persons with disability occurs in the
contexts of Status, Functionality and Outcome.[58] As per the Status
attribution method, once it is established that any individual is a
person with disability, the law presumes a lack of capacity. For
example, the provision that a person with psychosocial disability
cannot adopt a child[59] or the bar on blind persons' unassisted
operation of a bank account.[60] In functional test, the person with
disability is considered incapable if, by reason of the disability, he
or she is unable to perform a specified function and not merely on the
basis of his status. Disability here is a threshold condition.[61]
According to the ‘outcome test’, the attribution of incompetence is on
the basis of the decision arrived at by the person with disability. For
instance, person with a psychosocial disability after voluntarily
seeking psychiatric treatment later decides to discontinue. His
competence is questioned only in second instance.[62]
Professor Dhanda, however, concludes that in reality all these tests
operate in a similar manner and once the status of disability is
established no searching scrutiny is made by the judiciary as to
whether the impugned disability has in fact rendered the person
‘disabled’ or incompetent for any transaction.[63] Again, the spot
light is on the opinion of the medical officer or an expert and the
experience of the person with disability becomes insignificant.
Disability is a status that is initially identified, named, or
conferred, not by the individual, but by ‘experts’, usually medical
experts, although the ramifications of disability are significantly
social and political.[64]
MODELS TO PROVIDE FOR LEGAL CAPACITY
A law may guarantee legal capacity in three models. It may only declare
that all persons with disability shall have legal capacity in all
aspects of life and stop at that. There are no special redress
mechanisms provided to safeguard it and thus we need to rely on the
ordinary courts and ordinary procedures. What this does is, it makes
clear that all persons irrespective of disability are persons before
law and capable of having rights and obligations. However, this is bare
necessity and hence it is the minimalist model. It is a passive model
and fails to give any functionality to the capacity. While right to
seek support may be implicit in this, it only states that seeking
support would not deny legal capacity and there is no obligation in law
to support either individually or structurally.
In the interpretation of statues there is a heavy reliance on the
techniques of literal reading[65] and considering only that which is
explicitly expressed and excluding the unexpressed desires,[66] it
would be riskier if the statue deals with the sub-threshold without
guaranteeing them anything more.
The other model could be wherein legal capacity though not explicitly
mentioned is presumed; processes and programs are built into the law by
which the deprivation is dismantled; and if required, support is
constructed to facilitate exercise of legal capacity. This pro-active
model of legal capacity is especially suitable for those persons with
disabilities who have been for long denied legal capacity and are still
in a state of deprivation as for them just a recognition of legal
capacity in the law may not be enough to result in their exercising
legal capacity and more pro-active measures of establishing support may
be required for that capability to actually transform itself into
functioning. The issue is that when it is a matter of common knowledge
that there are a range of cases wherein the deprivation of legal
capacity is either sanctioned or legitimised by legal system it makes
more sense to make a clear statement of presumption of capacity. The
anxiety is that this model may not end up promoting the paternalism
over rights one as it may convey that all people with disability depend
on support to exercise their capacity.
However, a mere proclamation or right is not fulfilment of right.[67]
Merely to enjoy status, and not the substance of right is not
enough.[68] If treatment as an equal is a right, then as Henry Shue
says, it provides a rational basis for a justified demand that the
actual enjoyment of its substance must be socially guaranteed against
the standard threats and thus the guarantees must be provided.[69] As
right entails a duty, it is justified demand that necessary
arrangements are provided, so that one may enjoy the substance of
it.[70] In the Dworkinian sense, the access to arrangements then
becomes a set of derivative rights that flows from the fundamental or
basic rights. The fundamental right is unfulfilled until arrangements
are in place for people to enjoy whatever it is that they have right
to.[71] They form an essential part of ‘guaranteeing’ the enjoyment of
right. The arrangements may also take the form of law, making the
rights legal[72] as well as moral. The right to access arrangements or
support systems is an essential to exercise all of the incidents of
legal capacity and until that right is guaranteed, the social and
constitutional guarantees would have a negligible impact on ‘ordinary
life’.[73] Thus the model we have will in explicit terms has the
following components, viz. (i) recognition and guarantee of ‘legal
capacity’; (ii) right to access arrangements and support systems
essential to exercise legal capacity; (iii) correlative duties on part
of state to guarantee the fulfilment of these rights; and (iv) securing
the right by explicitly discontinuing, prohibiting and punishing such
practices, whether legally sanctioned or not, that have the effect of
denying legal capacity for persons with disability. Since this model
has both the pro-active and minimalist parts, it may be called as the
hybrid model. In fact the Convention itself provides for right to
access support[74] for exercising legal capacity and right to access
arrangements for their full participation.[75] Denial of this support
or arrangement is also discrimination.[76] Thus it could be seen that
the hybrid model is most akin to the one enshrined in the Convention.
Part IV: Discredited and Discreditable: Construction of Legal Capacity
in the Disability Rights Legislation
Taking cue from the modes in which attribution of incapacity is made by
the law, it is only logical that there will be certain traits that the
law may not expressly label as ‘disability’ while there will be some
where the law makes an express mention only to deny legal capacity.[77]
There may also be instances or transactions wherein certain
requirements only entails incapacity which if disclosed will not allow
the maker to enter into such transaction or play him or her out in such
instances.[78] They would either consciously opt out of those
situations or they would hide their identity to gain access. There
might be certain course of action that people may avoid for there may
not be any point of return once they are into it.[79] Legal capacity
being intrinsic to ones self-autonomy and dignity as an essential to
ones personhood, it is one of the most cherished right that any person
possesses something that is too precious to be even risked. This may
also explain the lack of participation and avoiding specific
transactions which they are otherwise entitled to. The issue of ‘coming
out’ or ‘disclosure’ is particularly crucial for persons living with
invisible disabilities.[80]
Thus there emerge two sets of persons with disability: those whose
stigmatizing features are public knowledge (the discredited) and those
who conceal their stigmatizing characteristic (the discreditable).[81]
Reading human rights in historical context, it can be said that ‘human
rights’ movement has had dual functions. First, it sought to bring to
an end the political practice of using ‘legal incapacity’ to strip
certain groups of human beings of their social and economic powers, and
secondly it protected the members of the groups that have historically
been denied full legal person hood from wide ranging injuries to their
human dignity.[82]
It appears that there are two worlds of persons with disability, one
whose legal capacity is explicitly denied by the law, judicial
interpretations and their societies and others whose capacity is alive
but they their disability being invisible or not public there is risk
attached with disclosure considering the socio-political ramifications
of the declaration of disability. The world of discreditable people
with psychiatric disabilities is both much larger and much less visible
than the world of discredited people.[83] It must however, be noted
that Goffman and Stefan used this classification primarily for the
persons with psychosocial disability.
It must be noted that the distinctions between discredited and
discreditable do not arise from differences in severity of diagnosis,
symptomatology, or bizarreness of behaviour[84] nor does it have
anything to do with economics and class. The difference between the
two, as Stefan chronicles, lies in the social group that they belong
to,[85] the attitudes of the parents,[86] their employment which tends
to mirror their personal characteristics, etc. But the major
distinguishing feature is the oppression that the discredited had to
witness at the hands of professionals who are supposed to treat them.
This experience communicates and reinforces their diminished status and
stigma, their powerlessness to resist indignities and bodily intrusion,
their lack of credibility, and the futility of complaint.[87] It must
be recalled that once they are in the institutions, there is a loss of
legal capacity for them to refuse any intrusion with their bodily and
mental liberty, integrity and privacy.
There is a clear difference in the discrimination both the groups
face.[88] Disclosure is frightening because of the potential for social
ostracism and exclusion. It can have devastating effects on employment,
educational and professional opportunities, child custody, and medical
care.[89] They fear involuntary institutionalisation if they disclose,
something that has the potency to spoil their identity.[90] The stigma
and the resultant segregation are rigidly enforced by the social norms
and social legislations. Goffman notes that for the discreditable
people ‘passing’ among the ‘normal’ people is crucial to manage
stigma.[91] In my opinion, the legally sanctioned presumption of
incapacity associated with disability which prevented equal respect
human dignity and integrity to person with disability has a significant
role in this. May be due to long history denial of legal capacity, that
for a ‘non-disabled’ an image of a ‘person with disability’ is of
powerlessness, dependence, dysfunction and helplessness.[92] The
absence of these traits in the discreditable group puts a question mark
on the credibility on their complaints.
Both groups have different agendas. For discredited, it revolves around
the issues of choice and the end of coercion and force, whether in law
or in practice. They expect that law would minimise their restraints
and respect their autonomy.[93] For discreditable, confidentiality is
critical and deplore the stigma that forces them to secrecy and
deception. Like their discredited counterparts they complain of
restraint and autonomy in choosing both therapy and the therapists.[94]
If we need to address the concerns of both the groups in the same
legislation then we also need to consider the unifying factors of both
groups. The primary issue for both the groups is that of
credibility[95] which does have a strong connection with denial of
legal capacity. The disclosure by the discreditable is important
because in the self advocacy of legal capacity for the discredited, it
is the discreditable that need to take the lead.[96] It is however true
that the alliance would also help the discreditable groups also to
participate and lend credibility to their experience and not living a
parallel person.[97] The issue now is how a disability rights law
should be and in particular how should the legal capacity provision be
constructed so that the co-existence of both groups hurts neither?
When we are seeking to make a comprehensive legislation for the persons
with disability and want it to be profounder than the earlier law
consistent with the developments in the international arena, it, in my
opinion, would be advisable to consider the entire gamut of disability
as a lived experience. Since the discredited group has been denied the
personhood either expressly by law or by practice, the discreditable
fear the similar loss for them and hence refrain from disclosing their
disability.
In its own way Article 12 is the vehicle that enables us to complete
the non-discrimination journey which protects people against the
behaviour of third parties by giving voice back to people to direct
their own lives.[98] The insertion of the value of equality in
traditional fields like legal capacity enables us to see the imbalance
between autonomy and protection for what it is - and to redress it.[99]
In Unnikrishnan[100] the court had observed that right to life and
liberty inheres in every person. In another case the court
had observed that denial of equality of the rights and opportunities
and of dignity and of the right to equal protection against any
discrimination violates Article 14 of the Indian Constitution.[101]
Significantly, the Supreme Court in the Suchita Srivastava[102] case
made an observation: “the State must respect the personal autonomy of a
mentally retarded woman with regard to decisions about terminating a
pregnancy.” The recent judgments show the significance of ‘personal
autonomy’ and it has been regarded as integral to one’s inherent
dignity.[103]
Human rights discourse in India is primarily comprises of the judicial
activism when the Court gave an expanded meaning of right to life and
personal liberty. What the UNCRPD did and what the domestic
legislations in consonance with it would need is a paradigm shift which
begins with explicit recognition of legal capacity of persons with
disability and its guarantee. A law on the rights of persons with
disability without an explicit provision on legal capacity would be
incomplete. The jurisprudence behind Articles 14, 19 and 21 of the
Constitution laid down by the apex court is a strong and familiar legal
base to incorporate that paradigm shift in the Indian disability rights
law making.
Thus, for the vast majority of persons with disabilities (includes both
discredited and the discreditable) recognition of legal capacity,
complimented by penal provisions to secure rights and authority that
provides redress when capacity is denied may suffice. However, for
those persons with disabilities who have been for long denied legal
capacity and are still in a state of deprivation (which primarily would
be the discredited group), merely the recognition of legal capacity in
the law would not be enough to result in their actual exercise of legal
capacity and more pro-active measures of establishing support may be
required.[104] In my opinion, the disability rights movement
will greatly benefit with the synergy of both the groups and therefore
it may not be advisable to have multiple legislations. The difference
between the two lies in the intervention required to express autonomy.
In that respect, it seems that the hybrid model guaranteeing legal
capacity, supplemented by an efficient grievance redressal and an
authority having powers to impose sanctions, is an appropriate model
wherein people with disability who need support to exercise legal
capacity have right to demand it and the support being a derivative
right can in no circumstance determine the fundamental right of legal
capacity.
Part V: Legal Capacity for the Persons with High Support Needs
Persons with high support needs basically comprise of those who
experience much profounder and severer disabilities. Hence, there can
be another classification on the basis of the support required to
exercise legal capacity. There are persons who have higher support
needs and consequently need more proactive interventions for them to
effectively exercise their capacity. But in these cases, the rights are
contingent on identification. Therefore, how we identify these severer
disabilities is crucial. Who shall determine disability and
particularly the ‘severe disability’ or what occasions ‘high support’?
This is an important question of wide reaching ramifications and I
shall briefly touch this now.
PROTOCOLS FOR IDENTIFICATION
Persons with disability as a whole are ‘same and different’.[105] This
approach, unlike the ‘same but different’ approach, cognizes disability
as a part of lives. As said before, disability is not found but it is
constructed.[106] The ‘normalization’ thesis with an ableist bias
resulted in the marginalisation of the persons with disability. In
addition to ‘marginalisation’, which according to Iris Marion Young, is
perhaps the most dangerous of the five faces of oppression.[107] This
is because it expels a whole category of people from any useful
participation in social life and then potentially subjects it to severe
material deprivation and even extermination.[108] Justice
requires that every person to develop and exercise his or her
capacities. Marginalisation, hence, is unjust as it effectively cordons
off the opportunities to exercise capacities in socially defined and
recognised ways.[109] Persons with disability and especially
those with severer disability are the recipients of this oppression.
In the existing ‘welfare’ paradigm, persons with disability,
particularly person with high support needs, are dependent on the will
of the state institutions for the support. Their exclusion from equal
civil and political rights is beyond doubt. Young says that in this
paradigm, being dependent implies being legitimately subject to often
arbitrary and invasive authority of social service providers and
bureaucrats who enforce rules to which the marginal must comply, and
otherwise exercise powers over the conditions of his or her life.[110]
The welfare agencies define and construct their needs themselves.[111]
Medical professionals know what is good for those they treat and the
marginals are virtually stripped of their right to claim to know what
is good for them. Dependency thus becomes a sufficient condition to
suspend right to privacy, respect and autonomy.[112] When the law is
made for extremely marginalised groups who have had their experiences
of exclusion to narrate, the power of determining themselves and their
needs must be with them and no other agency. Thus, it is for the
disability sector (neither welfare agencies nor medical persons) to
conceptualise the protocols for identification of ‘severe disability’
and ‘high support’. It is not that the introduction of social and the
cultural models of disability means that medicine has no role, after
all medical model did have some benefits in terms of devising medicines
and techniques that led to a manifold increase in survival rates.
However, the issue now is not of life expectancy but the expectation of
life and it is here that the narrow partial view of disability by the
medical sector is open for criticism.[113] The problem is that they
determine ‘not only the form of treatment but also the form of life for
the person who happens to be disabled’.[114] The social model only
reverses the hierarchy, and gives the right of self determination to
persons with disability and since it will be them who would be directly
impacted by the law, it is only fair for them to have the final word.
The dependency for support must be replaced by right to demand support.
I would now touch the issue of equal recognition before law and legal
capacity for persons with high support needs differently than the
people who do not need such level of support. The constitutional
jurisprudence in India surrounding the right to equality tells us that
likes may be treated as similarly and alike may be treated
differently.[115] To that extent there is a legal justification for
dealing with persons with high support needs differently and even
separately. What will be the object of this distinction? It is the
recognition of difference with an aim to have a law for the realisation
of the legal capacity for those persons with disabilities who have been
for long denied legal capacity and are still in a state of deprivation
whether because they are living in institutions or because they are
subsisting under systems of plenary guardianship. They need to be
treated differently as merely the recognition of legal capacity in the
law may not be enough to result in their exercising legal capacity in
fact; and more pro-active measures of establishing support may be
required. In fact, during the process of the formulating of Convention,
the adoption of the universal legal capacity paradigm was questioned
because it was feared that it did not adequately addressed the concerns
of the persons with high support needs. It was due to this apprehension
that paragraph (3) and (4) were inserted to Article 12 of the
UNCRPD.[116] Paragraph (3) obligates the State Parties to provide for
support and paragraph (4) was drafted to encompass a range of
safeguards against the abuse of support. Thus the persons with high
support needs as a group who may well had been short of a functional
legal capacity in the absence of the above paragraphs.[117]
This development, though at international forum, is a lesson for all
the States who decide to make a law for the rights of persons with
disability.
That being so, the differentia will be intelligible having a reasonable
nexus with the object sought to be achieved by this
classification.[118] In his thesis on justice as fairness, John Rawls
said that it only promotes fairness, that social and economic
inequalities are so arranged that they are to be of the greatest
benefit to the least-advantaged members of the society.[119] In the
nutshell, considering the judicial dicta around right to equality in
the Indian Constitution, the post modernist and liberalist
jurisprudence and the UNCRPD experience, it will only promote equality
with fairness that persons with high support needs must be dealt with
differently from other persons with disability. The options are: a twin
track approach in the new law, or a separate law like the National
Trust Act[120] which caters specifically to the persons with high
support needs.
At the cost of repetition, if the right of full legal capacity is a
fundamental right then, demanding support to exercise it is a justified
one having a rational basis inasmuch as it is a derivative right. In my
opinion, like the UNCRPD, the combined effect of legal capacity
provision including duty to support along with the definitions of
disability, high support and protocols for identification should be
inclusive of all persons with disability. The advantage of dealing with
persons with severer disabilities with others in the same statute is
higher probability that the consistency of interpretation may be
maintained in light of better coherence to the rights and other
benefits that the statute may provide. As an aside, law making is long
process and leaving the persons with severer disability for a
subsequent law might be a little unfair. What is suggested is a
twin-track approach wherein there are general provisions for all
persons with disability and special provisions to reinforce the legal
capacity along with other rights for the persons with high support
needs. The concern is that the generalised understanding of disability
and legal capacity must not devalue their difference and the right to
be treated differently.
Hybrid model of legal capacity which not only guarantees equal
recognition before law and legal capacity but also recognises a right
to access support and arrangements necessary for exercising legal
capacity and is supplemented with an efficient and effective grievance
redressal body and authority which is pro-active in dismantling
structural barriers but reactive in assisting individual difficulties
seems to be a more inclusive one and at the same time recognises the
need for support in exercising capacity but the same still does not
undermine the legal capacity of the person with disability.
Conclusion
What must be understood is that when we take up a legislative exercise
to cater to a marginalised section of the society like the persons with
disability, an either/or approach in utilizing the principles/models of
equality and legal capacity may not be a good idea. They are merely the
tools in law making. The only guiding principle is that the statute
must benefit the excluded group in the best possible way. Who
decides this? It has to be the sector, the persons with disability,
people who have had the experience in dealing with persons with
disability (representing different types of disabilities including the
people with high support needs), they may include the civil societies,
the persons in authorities catering to the sector and the academicians
and policy makers who are recognised to be the scholars in the field of
disability as Justice Holmes had rightly said: “The life of law has not
been the logic, it has been the experience.”
If we guarantee legal capacity, the right of informed consent,
supported decision making, equality and dignity to the persons with
disability in law, why not in its making itself?
ANNEXURE: DRAFT PROVISION ON LEGAL CAPACITY
This part is largely drawn from the proposed Amendments to the National
Trust for Persons with Autism, Cerebral Palsy, Mental Retardation and
Multiple Disabilities Act. The proposed amendment recognizes the full
legal capacity of all persons with disabilities. At the same
time it is acknowledged that some persons with disabilities may need
support to exercise their legal capacity and in the absence of such
support the recognition of legal capacity may not result in any real
difference in the lived reality of the person with disability. It has
the hybrid model and depicts the twin track model spoken in earlier
segment. It is divided into three parts. The first part is general. It
enunciates the right of legal capacity, right to access support to
exercise legal capacity and the safeguards to prevent the abuse of
support. The second part specifically caters to the persons with high
support needs where the approach is clearly more pro-active. However,
since it would be read with earlier provisions, legal capacity retains
its character of a fundamental right and the support would not diminish
it, as generally the anxiety with a purely pro-active model
is.
CHAPTER I: EQUAL RECOGNITION BEFORE LAW AND LEGAL CAPACITY
PART A
1. Notwithsatindig anything contained in any other law to the contrary,
persons with disabilities enjoy legal capacity on an equal basis with
others in all aspects of life and have the right to equal recognition
everywhere as persons before the law.
2. All the laws that deny legal capacity to persons with disability on
the basis of disability, shall hereinafter be void.
3. Every person with disability has the right to access all
arrangements and support necessary for exercising all the incidents of
legal capacity in accordance with one’s will and preferences.
The language in this provision is modified to make it gender neutral so
that person from third gender, who is at the same time a person with
disability is entitled to benefits under this Act.
4. The prescribed authority shall take appropriate measures and make
suitable schemes and programmes to provide access by persons with
disabilities to the support they may require to exercise their legal
capacity.
The sector needs to take a call as to whether National Trust shall be
the authority for all the programmatic interventions or its scope is
restricted to the persons with the high support needs only.
5. In no case shall the legal capacity of persons with disabilities be
questioned or denied because such person with disability accesses
support to exercise such legal capacity irrespective of the extent of
support utilized.
6. The Authority must ensure such safeguards such that the arrangements
and support relating to the exercise of legal capacity must respect the
rights, will and preferences of the person.
This section only reinforces the principle that the demand for support
shall in no way undermine the authority of the person.
7. Only persons who have no conflict of interest with a person with
disability shall provide support to such person with
disability. If at any time during the subsistence of the
support arrangement, a conflict of interest arises, the support
arrangement shall cease to have effect.
8. No person providing support either individually or as a part of a
network shall exercise undue influence on a person with disability.
9. The person with disability using any support or arrangement shall
have the right to alter, modify or dismantle any support arrangement
and substitute it with another. Provided that such alteration
modification or dismantling shall be prospective in nature and shall
not nullify any third party transactions lawfully entered into by the
person with disability along with the support arrangement.
This addition is made by the way of abundant caution so that
transactions entered into by the exercise of undue influence, fraud or
mistake, are voidable at the option of persons with disability.
10. In fulfilment of its obligation to facilitate the provision of
support for persons with disabilities, the prescribed authority shall
draw up guidelines to facilitate:
Registration of Advance Directives
Recognition of Support Circles
Registration of enduring Powers of Attorney
Appointment of Personal Assistant
Any other suitable support.
PART B
(1) The prescribed Authority shall take immediate steps to put in place
suitable support measures for the exercise of legal capacity by persons
with disabilities and especially for persons with disabilities living
in institutions and persons with disabilities who have high support
needs.
(2) The Authority shall also devise appropriate policies and schemes
which provide suitable support to persons with disabilities and
especially persons with disabilities who have high support needs to
enable them to realize the civil political rights guaranteed under this
Act and the social, political, economic and cultural rights guaranteed
under the United Nations Convention on the Rights of Persons with
disabilities.
The addition has been made keeping in view that this Act seeks to be a
comprehensive law on civil and political rights.
(3) The authority with all the local level committees shall take
suitable steps including, where appropriate, mediation proceedings, in
order to assist persons with disabilities to exit from plenary
guardianship and to help set up where so desired by persons with
disabilities suitable support arrangements for the exercise of their
legal capacity. These review activities of the local level committees
are facilitative in nature and no person with disability can be denied
legal capacity due to the delay or non occurrence of the review
activity.
The language of this provision is altered to remove the aid component
since the persons with disability have right to access support
arrangements for exercising their legal capacity as mentioned in
earlier part.
PART C
(1) The prescribed Authority shall undertake the task of conceiving new
kinds of support, and formulating guidelines on the already included
support, in active consultation with persons with disabilities;
disabled peoples organizations; parents associations and other
concerned members of civil society.
This is important as it ensures participation of persons with
disability and the persons associated with the sector for a significant
length of time in devising new schemes and mechanism of support. This
is also necessary since the thrust of earlier paradigm was legal
incapacity.
(2) The Authority shall devise suitable mechanisms to obtain feedback
from the recipients of support on the suitability and usefulness of the
support provided and if and whether they desire any modification or
addition to it.
(3) In order to ensure that support is provided whilst respecting the
legal capacity of persons with disabilities the Authority shall
regularly conduct awareness raising and sensitization programmes on the
role, necessity and manner of providing support.
OTHER RECOMMENDATIONS
It is for the sector to take call as to whether we declare that
coercive detention and forced institutionalisation is unlawful and
punishable under this part, or this part and part relating to offences
and penalties, or only to the part relating to offences and penalties.
Though with Anuj Garg, the Supreme Court did extend the prohibited
grounds of discrimination when it included ‘or any other analogous
grounds’, yet it will be better if Article 15 is amended to include
‘disability’ in the list of prohibited grounds.
Amendment to Article 14 adding the word ‘All citizens shall have equal
recognition before law’ so that we introduce the paradigm of universal
legal capacity as like persons with disability there are thousands of
people who also have a long history of denial of legal capacity by law,
structures and practices.
[1] Ron Amundson, Disability, Handicap, and the Environment, 23 J. Soc.
Phil. 105, 113 (1992).
[2] Cox-Interclass Discrimination, 431
[3] Jeannette Cox, Crossroads and Signposts: The ADA Amendment Acts of
2008, 85 Ind. L.J. 187, 190-1 (2010).
[4] Simi Linton, ‘Claiming Disability: Knowledge and Identity’, 9 (New
York: New York University Press, 1998)
[5] U.S. Airways, Inc. v. Barnett, 535 U.S. 391, 397 (2002).
[6] Americans with Disability Act, 1990
[7] Jeannette Cox, Disability, Stigma and Inter-class Discrimination,
62 Fla. L. Rev. 429, 434 (2010). (Hereinafet, Cox-Interclass
Discrimination)
[8] Michael Ashley Stein & Michael E. Waterstone, Disability,
Disparate Impact, and Class Actions, 56 Duke L.J. 861, 921 (2006).
[9] Samuel R. Bagenstos, Subordination, Stigma, and ‘Disability’, 86
Va. L. Rev. 397, 418 (2000)
[10] Jacobus TenBroek & Floyd W. Matson, The Disabled and the
Law of Welfare, 54 Cal. L. Rev. 809, 814 (1966)
[11] United Nations Convention on the Rights of Persons with
Disability, 2006
[12] Aristotle, ‘3 Ethica Nicomachea, 112-117, 1131a-1131b, Ackrill, J.
L. and Urmson J. O. (eds.), W. Ross, Translation, Oxford University
Press, 1980.
[13] Owen Fiss, Groups and the Equal Protection Clause, 5 Philosophy
and Public Affairs, 107 (1976).
[14] For example, building bye-laws that do not mandate construction of
ramps, elevators or universal designs.
[15] Peter Westen, The Empty Idea of Equality, 95 Harvard Law Review,
No.3, 1982, p.537. (Hereinafter, Peter Westen)
[16] The limitations of the formal approach to equality are
acknowledged in the interpretation of the idea of non-discrimination
provided by the Committee on the Elimination of Discrimination against
Women, where the Committee stated that Articles 1 to 5 and 24 together
indicate that State Parties under CEDAW are required to go beyond a
formal interpretation of equal treatment between men and women to
counter and improve the de facto situation of women and to address
prevailing gender relations and the persistence of gender-based
stereotypes that affect women. See General Recommendation No. 25 on
Article 4 Paragraph 1, of the Convention on the Elimination of All
Forms of Discrimination against Women, on temporary special measures,
30 January 2004, ¶ 6.
[17] The advent of strict scrutiny and intermediate scrutiny in the
judicial review of legislations are a pointer to this change.
[18]Christopher McCrudden, The New Concept of Equality, 2003,
(available at:
http://www.era.int/web/en/resources/5_1095_2954_file_en.4194.pdf).
[19] For American Context, see Regents of the University of California
v. Bakke 438 U.S. 265 (1978). For Indian context, look at Article 15(4)
and Article 16(4) of the Constitution. These articles have been
expounded in several landmark decisions by the Supreme Court like Indra
Sawhney v. Union of India, AIR 1993 SC 447, M. Nagraj v. Union of
India, AIR 2007 SC 71. More recently in Ashoka Kumar Thakur v. Union of
India, (2008) 6 SCC 1
[20] Fredman, Sandra. ‘Discrimination Law’, 14 (Oxford: Oxford
University Press, 2002).
[21] Bhikhu Parekh. A Case for Positive Discrimination, in Bob Hepple,
and Erika Szyszczak, (ed.) ‘Discrimination: The Limits of the Law’,
(London: Mansell Publishing Limited, 1992) pp.261 –280. See also, Nagel
Thomas, Equal Treatment and Compensatory Discrimination, 2 Philosophy
and Public Affairs, 356-7 (1973).
[22] Peter Westen, 537-
[23] It can be seen in our conjoint reading of Article 14, 19 and 21.
[24] Ronald Dworkin, ‘Taking Rights Seriously’, 227
[25] It is trite to say that this includes all the positive action
taken to accord level playing field to the disadvantaged and the
marginalised sections of the society.
[26] Kathleen Lahey, ‘Are we ‘Persons’ Yet?: Law and sexuality in
Canada’, 115 (Toronto: University of Toronto Press, 1999).
(Hereinafter, Lahey)
[27] Ken Davis, Disability and Legislation: Rights and Equality, 124 in
gerald Hales, ‘Beyond Disability: Towards an Enabling Society’,
(London: Sage Publications, 2003). (Hereinafter, Ken Davis)
[28] Ibid.
[29] Edah Wangechi Maina, The Right to Equal Recognition before the
Law, Access to Justice and Supported Decision Making, Presentation at
the CRPD Conference of Parties, 2-4 September 2009, New York.
(hereinafter, Edah Maina)
[30] Article 14, Constitution of India, 1950.
[31] George Klosko, ‘Democratic Procedures and Liberal Consensus’, 151
(Oxford: Oxford University Press, 2000)
[32] Venkateshwara Theatres v. State of A.P., (1993) 3 SCC 667
[33] As laid down in state of West Bengal v. Anwar Ali Sarkar, AIR 1952
SC 75
[34] M.P. Singh (ed.) ‘Constitution of India’, 38 (Lucknow: Eastern
Book Company)
[35] Indira Sawhney v. Union of India, AIR 2000 SC 48, St. Stephen’s
College v. University of Delhi, AIR 1992 SC 1630.
[36] Naz Foundation v. Government of National Capital Territory of
Delhi,
[37] Anuj Garg v. Hotel Association of India, (2008) 3 SCC 1
[38] Although these cases pertain to gender issues, yet the
jurisprudence laid down by the courts is relevant. See Roe v. Wade
(reproductive Choices) John Vallamattom v. Union of India (2003) 6 SCC
611 (Discrimination in Divorce law). Anuj Garg (Supra).
[39] Article 21, Constitution of India, 1951: No one shall be deprived
of life and personal liberty except by the procedure established by law.
[40] Maneka Gandhi v. Union of India, (1978) 1 SCC 248
[41] Ibid.
[42] Ibid. at 102. Although in this book the author makes a case for
full legal capacity for the Lesbians, Gay, Bisexuals, and Transgender
people, in my opinion, this argument holds water for all the
disadvantaged groups.
[43] Hans Kelsen, ‘General Theory of Law and State’, 90 (Cambridge:
Harvard University Press, 1945, 3rd Print, 2009)
[44] Ibid. at 91
[45] See http://fse.tibiscus.ro/anale/Lucrari2009/123.%20Lepadat.pdf
(last visited on: November 4, 2010)
[46] Ibid.
[47] Olimpiad Solomonovich Ioffe, ‘Soviet Civil Law’ 26 (Dordrecht:
Martinus Nijhoff Publishers, 1988)
[48] Barbara Weiner and Robert Wettstein, ‘Legal Issues in Mental
Healthcare’, 285 (New York; Plenum Press, 1993)
[49] Equal Legal Rights, Access to Justice Crucial to Implementation of
Disabilities Convention, Say Speakers as Conference of States Parties
Continues, Press Note of the UN General Assembly, September 3, 2009 at:
http://www.un.org/news/press/docs/2009/hr5000.doc.htm (last visited:
November 4, 2010)
[50] James Charlton, ‘Nothing About Us, Without Us: Disability
Oppression and Empowerment’, 3 (Berkley: University of California
Press, 2000). (Hereinafter, Charlton)
[51] Amita Dhanda & Gabor Gombos, Catalyzing Self Advocacy: An
Experiment in India, p. 60 [52] Lahey, at p. 101. However, the author
here speaks in the context
of the LGBT rights.
[53] Charlton, p. 3
[54] Amita Dhanda, Legal Capacity in the Disability Rights Convention:
Stranglehold of the Past or Lodestar for the Future? 34 Syracuse J.
Int'l L. & Com. 429 (2007) (Hereinafter, Dhanda)
[55] Article 12(2) states, “States Parties shall recognize that persons
with disabilities enjoy legal capacity on an equal basis with others in
all aspects of life.”
[56] World Conference on Human Rights, June 14-25, 1993, Vienna
Declaration and Programme of Action, ¶¶ 63-65, U.N. Doc A/CONF.157/23
(July 12, 1993)
[57] Tina Minkwitz, The United Nations Convention on the Rights of
Persons with Disabilities and the Right to be Free from Non-Consensual
Psychiatric Interventions, 34 Syracuse J. Int'l L. & Com. 405,
408 (2007).
[58] Dhanda, pp. 431-3
[59] Section 7, 8 of the Hindu Adoption and Maintenance Act, 1956
[60] Not actively present in law but routinely reported by blind
persons since the bank documents are not accessible to them.
[61] Dhanda, at p. 430
[62] Dhanda, at p. 431
[63] Ibid. at p. 432
[64] Susan Stefan, “Discredited” And “Discreditable”: The Search for
Political Identity by People with Psychiatric Diagnoses, 44 Wm.
& Mary L. Rev. 1341, 1342 (2003). (Hereinafter, Susan Stefan)
[65] Whiteley v. Chappel (1868; LR 4 QB 147) (the court denied right to
vote on the literal reading of the statute) Anjali Roy v. (Interpreting
the word ‘only’ in Article 15)
[66] The rule of Expressio unius est exclusio alterius. [67] Henry
Shue, ‘Basic Rights: Subsistence, Affluence and U.S. Foreign
Policy’, 2nd ed., 15 (West Sussex: Princeton University Press, 1996).
(Hereinafter, Henry Shue)
[68] Henry Shue, p. 15-6
[69] Henry Shue, p. 13
[70] Ibid. at p. 16
[71] Ibid.
[72] The importance of translating moral rights into legal claims is
highlighted by Kathleen Lahey and to an extent by Hans Kelsen and
H.L.A. Hart when they say that while law and morality ought not to be
mixed it does not tantamount to say that law should not be moral. The
currency in this transformation lies in the clearer mandate which would
have to be enforced by even a conservative judge/authority.
[73] Lahey, p. 115
[74] Article 12(3), UNCRPD
[75] Article 9, UNCRPD.
[76] Article 2, UNCRPD.
[77] Particularly if we look at the Status test, the law declares that
a person with psychosocial, intellectual, or physical disability cannot
perform a specific legal task. For example a person proved to be of
unsound mind cannot adopt a child. This entails that once proved
unsound, the person is incapacitated. This will obviously reinforce a
medical model and hence there would be cases which might not exactly
conform to the medical requirements of unsoundness (e.g. extreme
depression) while others may (e.g. delusion or schizophrenia). The
former are eligible for performing the legal task of adoption. There is
no scrutiny of their capacity because the presumption is that of
incapacity.
[78] Particularly if we look at the Functionality test, for example, in
case of entering into contract one may present oneself as cognizant of
all the facts and law relevant for the complete understanding of
contract while that may not be the case. The other instance is when
people fake their age to obtain driving licence.
[79] Particularly, if we look at the outcome test, there is a constant
fear in taking up a psychiatric treatment because once a treatment is
given a choice to come out of it is at best non-existent. Besides this,
the society with its share of prejudices would have already labeled
such person as of unsound mind.
[80] Susan Stefan, at pp. 1343-6.
[81] Erving Goffman, ‘Stigma: Notes on the Management of Spoiled
Identity’, 4 (New York: Touchstone Books, 1963). (Hereinafter,
Goffman). Although the terminology is pejorative of the persons with
disability, it is evocative of their experiences and hence I chose to
adopt the terminology used by Goffman and Susan Stefan who have in
their respective works given a vivid account of discrimination,
exclusion, torture and oppression that persons with disability have
faced over the years.
[82] Lahey, 101
[83] Susan Stefan, at pp. 1352.
[84] Ibid. at p. 1354
[85] See Sue Estroff et al., Everybody's Got a Little Mental Illness:
Accounts of Illness and Self Among People with Severe Persistent Mental
Illness, 5 MED. ANTHROPOLOGY Q. 331 (1991)
[86] Susan Stefan, at pp. 1355.
[87] Susan Stefan, at pp. 1356. I believe that this has a lot to do
with the perception of their incapacity to make informed decision once
they are admitted into treatment.
[88] Ibid. pp. 1357-1363.
[89] Ibid. at 1358, 1364.
[90] Goffman at p. 51-62
[91] Ibid.
[92] Nicholas Watson, Enabling Identity: Disability, Self and
Citizenship, 147 in Tom Shakespeare (ed.), ‘Disability Reader: Social
Science Perspectives’, (London: Continuum International Publishing
Group, 1998)
[93] Susan Stefan, at pp. 1371.
[94] Ibid. at p. 1371-2
[95] Ibid. at p. 1379
[96] Amita Dhanda & Gabor Gombos, Catalyzing Self Advocacy: An
Experiment in India, p. 60
[97] Susan Stefan, at p. 1379-80
[98] Gerard Quinn, An Ideas Paper presented at the Seminar on Legal
capacity by the European Foundation Centre at Brussels on June 4, 2009,
p. 7.
[99] Ibid. at p. 12.
[100] Unnikrishnan v. State of A.P., (1993) 1 SCC 645
[101] Gaurav Jain v. Union of India, AIR 1997 SC 302
[102] Suchita Srivastava v. Chandigarh Administration, AIR 2010 SC 235
[103] Selvi v. State of Karnataka, Criminal Appeal No. 1267 of 2004
decided on May 5, 2010; Khushboo v. Kannaimmal, (2010) 5 SCC 600
[104] Consensus Paper on Substantive Content of New Law on Disability
Rights, p. 21, proposed by Centre for Disability Studies, NALSAR
University of Law, Hyderabad, Andhra Pradesh, India, p. 21.
[105] Patrick Devleiger, Frank Rush and David Pfeiffer, Rethinking
Disability as Same and Different: Towards a Cultural Model of
Disability, in Patrick Devleiger, Frank Rush and David Pfeiffer,
‘Rethinking Disability: the Emergence of new Definitions, Concepts and
Communities’, 10 (London: Garant Publishers, 2007)
[106] Ibid.
[107] Iris Marion Young, Five Faces of Oppression, in Thomas Wartenberg
(ed.), ‘Rethinking Power’, 174 (Albany: State University of New York
Press, 1992).
[108] Ibid. at 186
[109] Ibid. at 187
[110] Ibid.
[111] Id.
[112] Id.
[113] Michael Oliver, ‘the politics of Disablement’, 48 (Hampshire:
Macmillan Press, 1990)
[114] Ibid. at 49.
[115] St. Stephen's College v. University of Delhi (1992) 1 SCC 558,
Indira Sawhney v. Union of India, AIR 1993 SC 477
[116] Edah Maina, p. 2.
[117] Ibid.
[118] State of West Bengal v. Anwar Ali Sarkar, AIR 1952 SC 75
[119] John Rawls, ‘A Theory of Justice’ (Revised edition), 52
(Cambridge: Harvard University Press, 1999)
[120] The National Trust for the Welfare of Persons with Autism,
Cerebral Palsy, Mental Retardation and Multiple Disabilities Act, 1999